In 2007 my beloved son Andrew died from vJCD aged just 24. Since then I have created a campaign to find out how and why he died and who is to blame for this terrible disease. This is my blog containing much of the material I have collated and the history of the campaign.
Tuesday 21st June 2016
Check out the British Red Cross home page and their current fundraiser ‘Every crisis is personal’ and hear my story and how the Red Cross supported my Andrew during his last days when he was dying of human BSE. The Red Cross is there for everyone no matter what so please support this worthy cause. The Red Cross help people across the UK and the world regardless of their background or circumstance.
‘EVERY CRISIS IS PERSONAL’ British Red Cross
I was unable to get a wheelchair for my Andrew via the NHS or UK Department of Health the Red Cross loaned a wheelchair so that my 24 year old terminally ill son could get out of the house and move around our home. Three months after Andrew died I received a phone call from our local hospital Queen Alexandra Hospital, Cosham, Portsmouth, Hampshire UK. A female medic who did not leave her name asked, ‘ Is Andy there? Can I speak to him?
she continued ‘ As we are now ready to measure him for a wheelchair. However it may still be many months before we can offer one.’
You can imagine this bereaved mothers feelings to this conversation and total disregard for victims of vcjd. People suffering from vCJD/CJD are discriminated against and treated with utter disdain by many in the medical profession who are supposed to be helping and supporting victims and their families. Victims and their families bullied into silence and told not to tell anyone of their loved ones diagnosis, medical equipment and help given piecemeal if at all.
Thank goodness for charities like the Red Cross and their wonderful volunteers.
Wednesday June 1st 2016
Another family destroyed by CJD, this case highlights the long incubation period that humans have regarding CJD. The Coroners remarks are mis-leading as CJD was passed on-wards to Noel by his donor who was either carrying or incubating the deadly disease,
Noel’s donor would have been exposed to BSE infected material like millions of us UK and worldwide. There is a deliberate fudging of facts by various medical experts who are being influenced by government officials to keep the true facts and contamination levels of Human BSE out of the public domain.
Many thousands of people have contracted or been exposed to human BSE via contaminated instruments during operations, or blood,tissue, bone, organs from donors. 1 in 2,000 of in the UK now carry or incubate vcjd human mad cow disease, many of these carriers will be hospital patients, blood donors or organ donors.
We need a blood screening test for all patients so that we do not continue to re-cycle BSE into the human population via food, blood, medical proceedures and vaccines.
My thoughts and prayers are with Noel’s family and friends.
This tragic case has only just be made public, so I was unable to blog about this until today.
I will continue to fight for justice for all victims of human BSE past, present and those unfortunately to come.
Noel Kavanagh, aged 36, from Ballyragget, Co Kilkenny, lived a full life until he became ill in 2013 and died on October 20, 2014.
Thirty years previously, in July 1983, he underwent an eight-hour brain operation at the old Richmond Hospital on North Brunswick Street in Dublin. The neurosurgery followed a fall from a tractor in which Mr Kavanagh, then aged five, sustained a serious head injury.
He had a difficult recovery initially but subsequently improved and went on to live a full and busy life, Dublin Coroner’s Court heard. He enjoyed running and played soccer and was involved in the Special Olympics.
He was able to manage independently and worked in a garden centre, the court heard.
He was enjoying life until May 2013 when he began to feel tired, listless and drowsy.
He was brought to St Luke’s Hospital in Kilkenny and later transferred to Beaumount Hospital in Dublin. CT scans and a lumbar puncture were carried out and Mr Kavanagh was treated for an infection, thought to be a bacterial infection or meningitis, with antibiotics and steroids.
However, his clinical condition did not improve. He developed epilepsy and consultant neurosurgeon at Beaumont hospital Donncha O’Brien said a hemispherectomy — a rare surgical procedure where half of the brain is removed — was agreed as a treatment for persistent seizures.
During this procedure, brain tissue slides were taken and sent for analysis, revealing the presence of Creutzfeldt-Jakob disease or CJD. Mr Kavanagh had contracted CJD 30 years previously due to contaminated donor-graft tissue inserted during the neurosurgery performed at the old Richmond Hospital.
A post-mortem examination confirmed the diagnosis of CJD. The cause of death was brain changes due to CJD, related to the operation in 1983. Coroner Brian Farrell returned a narrative verdict setting out the circumstances of Mr Kavanagh’s death. Dr Farrell said a variant of CJD emerged in the early 2000s related to burger meat but this case concerned infected donor tissue.
“This is a set of unfortunate circumstances. The initial head injury was not fatal, but during that treatment, Noel contracted the infection,” he said.
Solicitor Michael Condren, representing the Kavanagh family, said it had been a testing and emotional time for the family.
Wednesday 13th April 2016
Reindeer in Norway have been diagnosed with prion disease the same as mad cow disease in cattle. Its the first official recognition of CWD in Europe Chronic Wasting Disease which is killing thousands of animals across the USA. CWD has been ‘officially recorded’ in 21 states across the USA. Many more deer are dying that are not being found or reported.
When will the USA and other governments admit that these cases of prion disease and CWD are in fact a direct consequence of BSE infection?
Norway residents eat bone-marrow from wild and herded reindeer as a delicacy, when will governments admit that many of the rising cases of dementia in the global population can be attributed to exposure to BSE infected material?
http://www.vetinst.no/eng/Highlights/The-first-detection-of-Chronic-Wasting-Disease-CWD-in-Europe). The (found dead) adult doe showed signs of below average body condition and was tested as part of the national surveillance programme for CWD in wild ungulates. Prion disease was confirmed in mid-March by both biochemical and immunohistochemical tests.
Wednesday 30th March 2016
French cattle confirmed as having BSE, cows/bulls never get mad cow disease in isolation the rest of the herd, siblings and parents of the affected animal may all be infected but not showing any symptoms. How many cattle have gone into the current food chain suffering from mad cow disease? How many more people will continue to die of the man made manufactured disease in the future? When will governments stop lying about this deadly disease that continues to enter the human food and medicine chain? When will many of the rising cases of dementia worldwide be attributed to exposure of BSE infected material, a preventable disease born, bred and exported from the UK?!
In the UK the government has decided no longer to test for BSE its down to passive surveillance which means farm workers have to look at a cow or animal and decide whether it may or may not have BSE before a vet is called in to check.
Just looking at a cow or bull in a field is no way to see if livestock have BSE. So cattle are still entering the food chain infectious with the deadly prions BSE that cause human mad cow disease vCJD
Tuesday March 15th 2016
‘facts do not cease to exist because they are ignored’ Aldous Huxley 1926-1929
Kenneth Clarke enabler of mad cow disease and Health Minister during the most lethal stages of the BSE epidemic has netted £430,000 in a book deal for his memoirs from publishers Macmillian.
The book titled ‘ Kind of blue’ has been cited by Ken Clarke’s huge PR team, as Clarke using his incisive memory to explain and explore his political career. Despite the fact that during the BSE/Phillips inquiry Clarke could not remember vital information, the former QC has a very selective memory when cornered about his involvement in the BSE cover-up!
All newspaper articles about Kenneth Clarke’s huge book fee and terrible decision by Macmillian to reward the enabler of BSE, have airbrushed mad cow disease and its thousands of human victims out of history. There has not been one mention about the human form of mad cow disease and the fact that at least one million infected cows went into the human food and medicine chain., during Kenneth Clarkes tenure as Health Minister.
I am now following the editor of Macmillian on twitter and have been appalled at the grovelling prose and respect shown to Kenneth Clarke whose deliberate and criminal actions have led to thousands of deaths due to vcjd and millions of us exposed across the world to a lethal pathogen.
Kenneth Clarke put his political career and the profits of the food and pharmaceutical industries before human health, my son Andrew paid the ultimate price with his young life dying of vCJD aged just 24.
I will continue to pursue Kenneth Clarke amoral man and liar whose criminal deliberate decisions during and since BSE had caused so many innocent deaths. The ongoing consequences means that 1 in 2,000 of the UK population now carry or incubate human BSE. Because of our exports these figures are comparable globally. BSE has not gone away it continues to kill animals and people.
The UK blood supply and vaccines also remain at risk of ‘ vcjd’ as does medical equipment in our hospitals. Neither are tested or screened for vcjd, human or animal BSE.
I am appalled that Kenneth Clarke and all those I name and shame on this website continue to gain financially from their corruption and criminal behaviour throughout BSE and since when they continue to lie and hide the truth surrounding the biggest political and health scandal of the 21st century.
However I have every hope with my investigations coming to fruition, that soon Kenneth Clarke and all those responsible for BSE and my beautiful boys unlawful death will face criminal charges in a court of law.
‘In a time of deceit telling the truth is a revolutionary act.”
Sunday 6th March 2016
This is the ninth Mother’s day, without my beloved boy Andrew, no card, present or more importantly a hug from my only son. I will never see his smile; hear his voice or laughter in this life ever again. I will never attend his wedding, hold his child in my arms or see Andrew walk into the future he should have had.
This is the everyday reality, and on-going grief and pain for all mothers who have lost their children to the human form of mad cow disease CJD.
I long to hold my son in my arms, time never heals the pain of his untimely and unlawful loss.
Miss you so much my beloved beautiful boy, my Andrew.
Tuesday March 2nd 2016
It has been eight long years since Andrew was unlawfully killed by vCJD the human form of mad cow disease. I remain heartbroken, time never heals when a parent has to bury their child.
I remain determined that those who killed Andrew are punished in a court of law. This is not just a bereaved mothers quest but, also to protect the millions of us that have been exposed to BSE. The food our children and families consume the medicines they ingest should be safe. Yet bovine material from cattle untested for BSE continue to be condoned by the UK and governments across the globe. Cattle continue to die of BSE and many infectious but not showing symptoms enter the human food and medicine chain.
1 in 2,000 of the UK population now carry or incubate this deadly avoidable man mad disease and across the globe the figures will be comparable. I do not want another mother or father, grandparent, sibling to go through the pain that I experience every single day and will do so till the day I die.
I have recently written a feature about Andrew and the grieving process in Woman’s Own January 11th 2016. Below are the links to that article about on going grief. All of us will loose a someone close during our lifetime and its so important that people who are bereaved can talk about their lost loved ones. The response from the 3 million readers of Woman’s Own has been terrific, I would value any feedback from visitors to this site and my blog.
‘What will survive of us is love’ (Poet Phillip Larkin)
Friday 29th January 2016
How many cases of Dementia/Alzheimer’s are really human mad cow disease?
‘1 IN 2,000 of the UK population now carry or incubate the human form of mad cow disease’ Health Protection Agency 2012
There is growing evidence that many cases of dementia are in fact mis- diagnosed CJD. Millions of us globally have been exposed to BSE infected material. Millions now developing dementia would have been exposed to the same lethal pathogen as my son Andrew, who was unlawfully killed by human BSE in December 2007 aged 24.
Hansard the archives of the UK Houses of Parliament, 24th July 2014, Science and Technology Select Committee is a report from an inquiry into the on-going risks of Human BSE within the UK and globally.
One of the inquiries many recommendations to the UK Government was:
‘ Calls for government to back research into atypical dementia amid concerns that CJD is being misdiagnosed particularly in the elderly’ (conclusions para 21) House of Commons Science and Technology Committee.
The global population is also being exposed to human mad cow disease BSE via medical instruments. As thousands of patients infectious with CJD but not showing symptoms are contaminating hospital equipment during medical procedures.
Currently world wide there is no efficient sterilisation procedure used in hospitals,clinics, medical centres that routinely clean instruments sufficiently to eradicate the deadly agent that causes human BSE/vCJD what also called ‘ prion disease’.
The report below highlights how cases of Alzheimer’s are considered infectious. Many experts are now investigating and finding links between the growing cases of dementia world -wide and human BSE. How many cases of Alzheimer’s/dementia are really vcjd? Brave scientists and experts who have spoken out about their research have been threatened and then silenced many intimidated with funding cuts.
Governments globally continue to protect the huge pharmaceuticals/ food corporations and those named and shamed on this website, rather than protect public health.
So millions of people suffering from dementia type symptoms will be denied the correct diagnosis and treatments, as authorities hide the truth about the ongoing lethal consequences of BSE to humans and animals globally.
Many cases of dementia will be the result of exposure to BSE infected material or via contaminated medicines, medical equipment, vaccines, blood, tissue, organs or medical procedures.
The authorities and their officials will continue to try and mask cases of vcjd human mad cow as dementia instead of the preventable disease human BSE.
I urge all families affected by cjd or have relatives affected by dementia type disease to challenge, question the medics and get the answers and the correct treatments your loved ones need and deserve. Contact me with any information you may have as this will be essential to my investigations.
The truth is gradually surfacing and soon our loved ones will receive the justice and support they need. Join me with this campaign, lobby your MP, Senator, the media, speak out about your experiences to your neighbours and friends. Together we can get the answers and put those responsible for the BSE epidemic into a criminal court.
This will finally help us all to move forward towards treatments and cures and to protect our children and grandchildren from the lethal consequences of Vcjd/ Prion disease.
Monday 11th January 2016
This week I had a two page feature published in popular magazine ‘Woman’s Own’ about Andrews campaign and my on going journey through grief. I wrote from the heart and talked about my experiences as a mother coping with loosing Andrew through vCJD and how grieving for a child is a life long journey of pain and memories.
With millions of readers the article has received a great deal of response from members of the public both in the UK and abroad.
Every time someone reads this blog, website, my book or articles about human BSE it gives my Andrew and all victims of human mad cow disease a much needed voice, in an world where increasingly the vulnerable and ordinary citizens are being undermined and dismissed by the establishment.
Thursday 24th December 2015
As another year is about to end BSE in cattle and vCJD the human equivalent continues to kill, devastate and disable. During this year cattle in Norway, Canada, Wales, England and across the globe continue to develop and die of BSE mad cow disease.
Across the UK and globe families are distraught as they watch their loved one die of the human form of mad cow disease, and still the UK government and governments across the globe refuse to acknowledge the ticking health time-bomb that has left ‘ one in 2,000 of the UK population carrying or incubating vcjd’ (Health Protection Agency research 2012). Millions more across the world have been exposed to the deadly disease BSE, via contaminated food and medicines.
John Gummer one of the enablers of human BSE is now head of the UK Climate Committee and has just attended a huge conference about the environment and climate change in Paris. The terrible irony of his continual influence in UK politics and financial power astounds and shocks me to the core.
However the campaign www.justice4andy.com continues to gain more power as families affected by BSE and the public unite in wanting a better world, with transparent and honest governments and officials. One day very soon my Andrew and all victims of vCJD and their families and friends will get the justice they need and deserve.
As 2015 ends and 2016 begins in just a few short days, I have never been more positive about the goals of this campaign finally coming to fruition.
My love for my son is stronger than any politicians influence or government, as there is no sell by date for a mothers love or determination to make good the promises I made to my dying boy.
‘Mum find out who did this to me’ and ‘make sure this never happens to anyone else.’
Andrews dying wishes 2007
Wednesday 16th December 2015
WHAT WILL SURVIVE OF US IS LOVE (Phillip Larkin)
Eight years today my beloved son Andrew died of vCJD, his young once healthy body and mind destroyed by a UK man made totally avoidable disease. Andrew was unlawfully killed.
I think of my beautiful dark haired, violet eyed boy every morning I awake and every night before I go to sleep. Time never heals when you have lost your child to the human form of mad cow disease/ Human BSE.
He was my Andrew dead at just 24 years old, he could be your son. He could be you!
Please continue to support www.justice4andy.com in memory of my son Andrew and all the other sons and daughters that have been and continue to be exposed to BSE and will die or be disabled by vcjd in the coming months and years.
Wednesday December 10th 2015
Last week I attended ‘the only way is ethics’ one of the UK’s biggest ethical festival. The festival was a week of various events, talks, music and gigs in a variety of venues across Glasgow, Scotland.
I gave a talk about the campaign and we showed a trailer of our new documentary, ‘Cash. Cows and Cover-ups’ which will be completed next year.
Here is a photo of me and Director Joe Mclean at the event. Thank you Scotland for your lovely welcome and supporting the campaign, also to all the people that we filmed and interviewed.
Tuesday December 1st 2015
COW IN CANADA DEVELOPS BSE
Another cow develops BSE in yet another country, ( see link below) how many BSE infectious cattle across the UK and worldwide have entered the human food chain without showing symptoms? Cattle never develop BSE in isolation, their siblings, parents and others in the herd would either be incubating mad cow or carrying the deadly disease without showing symptoms. Cattle can carry BSE for over a decade and humans upwards of 50 years before developing the lethal brain disease vCJD the human equivalent of mad cow disease. During that incubation period animals can be processed into the food chain and humans can donate blood, have operations and pass the disease onwards to other individuals.
How many more people will die of the human form of mad cow disease? before governments put aside their greed and misguided loyalty to the huge food and pharmaceutical corporations and admit there is a lethal ticking health time-bomb within the animal and human population. Too many government officials, politicians have close connections with the pharmaceutical/ agriculture industries, corrupt establishment figures look the other way whilst huge profits are made for shareholders, whilst human and animal health are bottom of the list.
Nineteenth Case of Bovine Spongiform Encephalopathy (BSE) in Canada
Friday 2nd October 2015
A cow drops dead from mad cow disease on a farm in Wales. How many more cows not showing symptoms of BSE continue to enter the human food chain here in the UK and globally?
How safe is our food? watch ‘cows cash and cover-ups investigating vcjd to find out more:
Saturday 26th September 2015
Today I attended the Memory Walk in Portsmouth in aid of a ‘world without dementia’. People from across the area with their families, dogs and children walked either 3km or 10km in memory of a loved one who had died or were suffering from Alzheimer’s/Dementia.
I was there to offer my support and raise awareness about CJD and all forms of dementia and how patients with dementia need the correct diagnosis as speedily as possible to receive the correct medication and treatment; for their particular form of the disease.
I was also there to remember my son Andrew and to highlight that very young people in their teens and early twenties also can suffer from the terrible symptoms of dementia, due to CJD the human form of BSE.
Thursday 10th September 2015
Explosive research by a leading UK scientist Professor John Collinge has revealed that Alzheimer’s may be transmissible in the same way as vCJD, the human form of mad cow disease.
Alzheimer’s disease which causes devastating memory loss, will now be recognised as ‘prion disease’ under the same umbrella as the human form of BSE.
Professor Collinge’ from University College London, research raises concerns that Alzheimer’s could be transmitted via surgery and blood transfusions, in the same way that Human Mad Cow disease has claimed many of its victims.
I am glad that Professor Collinge who treated my son, has revealed his findings. For some time experts have warned there is a strong link between the millions of people contracting dementia world- wide and CJD
All of these patients would have been exposed to BSE infected material during the 1980s and 1990s.
Infected beef flooded the UK and global human food and medicine chain for over a decade.
I gave oral and written evidence at the House of Commons, for the Science and Technology Committee. Their report raised grave concerns about many older people being mis-diagnoised with atypical dementia when in fact they have cjd.*
I will continue to push for all hospital patients and blood donors to be screened for vcjd, to prevent other needless deaths. I will also continue to be the voice of all of those affected by cjd and dementia.
It’s what my Andrew asked me to do.
*( House of Commons Science and Technology Committee report ‘ After the storm? UK blood safety and the risk of vcjd’ Conclusions Para 21)
Tuesday 8th September 2015
Three people in the last month have died of the human form of mad cow disease in Italy, two of the latest victims came from the Puglia region and died within a few weeks of each other.
Many cases of vcjd have been diagnosed in Italy and then brushed under the carpet by officialdom. I know of this because of my visits to Italy and meeting/filming families affected.
Human BSE continues to kill , whilst governments continue to hide the true numbers of cases in an effort to protect the agriculture, pharmaceutical and food industries and their huge profits.
My condolences to the Italians families affected, I will continue to fight for all victims of vcjd and their loved ones.
‘Mad cow’ fears after man dies in Turin
Published: 07 Sep 2015 10:21 GMT+02:00
An investigation has been opened after a man died from suspected ‘mad cow’ disease in Turin last week.
Francesco Catapano, a 53 year old from Ottaviano near Naples, was hospitalized in Turin in June and was later diagnosed with Creutzfeldt-Jakob Disease, otherwise known as ‘mad cow”disease.
He died on September 1st at Turin’s Molinette hospital.
The illness causes the brain tissue to deteriorate rapidly, resulting in death, usually within months.
It became notorious in the 1990s after an outbreak was attributed to eating infected meat and dubbed ‘mad cow’ disease by the media.
Only one form of the disease, variant CJD, is due to eating contaminated food, but officials believe this could be the cause of Catapano’s death.
“Genetic predisposition was not revealed during early exams and some of the results from the diagnostic procedure suggest that the case may be down to contaminated food,” Antonio Scarmozzino, health director at Molinette hospital, told La Stampa.
Wednesday 2nd September 2015
Today would have been Andrews birthday, so many long years without my son, so many years that Andrew should have lived, laughed and loved. He died at 24 and today he would have been just 32 years old. So young so much to live for…..
Time can never heal when there are so many unanswered questions about human BSE, and those responsible free and able to reap the financial rewards of their corruption and lies. Most have either become millionaires or very wealthy because of their involvement in the human BSE cover-up. Douglas Hogg, who fiddled his MPs expenses and was one of the architects of BSE and its corruption has just been made a peer in the House of Lords. Prime Minister, David Cameron is full of praise of Hogg who allowed millions of our families to be exposed to the human form of mad cow disease. Hogg will now sit alongside John Gummer in the House of Lords.
Any psychologist will tell you that families of children unlawfully killed, can never find any semblance of peace until those responsible for their loss have been made accountable.
I will continue to campaign and to strife for justice for Andrew and all victims of cjd, whilst safeguarding other families.
The world is a much poorer place without my beautiful boy Andrew, and remains a darker place whilst those responsible for BSE and it lethal on-going consequences to humans and animals remain feted and free.
Young Life cut short – for the brother of a dear friend
Do not judge a biography by it’s length,
Nor by the number of pages in it.
Judge it by the richness of it’s contents
Sometimes those unfinished are among the most poignant
Do not judge a song by it’s duration
Nor by the number of it’s notes
Judge it by the way it touches and lifts the soul
Sometimes those unfinished are among the most beautiful
And when something has enriched your life
And when it’s melody lingers on in your heart
Is it unfinished?
Or is it endless?
Monday 3rd August 2015
Do we really know what’s in our kids food?
Be part of a major film, keep our families safe from the on-going threat of human BSE. As the latest horse meat scandal highlighted – do we honestly know what’s going on in our food?
We need just a couple of thousand pounds to complete our one hour shocking documentary which will blow the lid on the corruptions and cover-ups in Westminster and globally, that allow large food corporations and pharmaceuticals to dictate government policy.
If you care about the food you eat, the politicians you elect, the scientists you place your trust in….
then support us in our investigative film, for the people by the people.
It will change the way you eat and shop!
or Partickular Films, Hayburn Studios, 23 Burgh Hill Street, Partick, Glasgow, G11 5N
Wednesday 8th July 2015
Check out the new documentary which will reveal, the many secret documents and cover-ups I have discovered, regarding BSE. Corruption within our government that goes right to the top of the establishment.
How millions of us have been exposed to a deadly disease which the UK government condoned, because they put profits of big business and officials careers before our children’s lives and futures. Human Mad Cow disease continues to kill in 2015 and affects us all. View the documentary to find out more.
Cows, cash, and cover ups, investigating variant CJD 2015 and beyond