Current Blog

 

Andrews_last_days_with_mumIn 2007 my beloved son Andrew died from vJCD aged just 24. Since then I have created a campaign to find out how and why he died and who is to blame for this terrible disease. This is my blog containing much of the material I have collated and the history of the campaign.

 

Friday 19th September 2014

This latest research below has defined the dosage of donated contaminated blood which may be needed to infect a human recipient with CJD.

It’s a terrifying scenario as incubation periods in human blood can vary as can the rate of infectivity.

A mean infection rate of 78 per cent is very high but the true figures could be significantly higher. This research shows an individual blood screening test for Human BSE is essential. Otherwise our blood banks will never been free of the rogue prions that cause the human form of mad cow disease. All blood donors and patients undergoing medical procedures should routinely have their blood screened for vCJD.

newborn andrew mum

Yet the UK department of health and the UK government continue to ignore growing research which shows that one in 2,000 of us carry Human BSE. Tens of thousands of UK citizens   who may carry vCJD donate blood and undergo medical procedures.

By with-holding funding and not support a blood test, the UK Government are condoning the re-cycling of VCJD in our blood supply and condemning more innocent people to a horrific avoidable disease.

 RESEARCH PAPER

A Development of Dose-Response Models of Creutzfeldt-Jakob Disease Infection in Nonhuman Primates for Assessing the Risk of Transfusion-Transmitted variant Creutzfeldt-Jakob Disease

Yin Huanga, Luisa Gregorib, Steven A. Andersona, David M. Asherb and Hong Yanga# + Author Affiliations

Office of Biostatistics & Epidemiology, U.S. Food and Drug Administration, Silver Spring, Maryland, USAa Office of Blood Research and Review, U.S. Food and Drug Administration, Silver Spring, Maryland, USAb

ABSTRACT

Estimates for the risk of transmitting variant Creutzfeldt-Jakob disease (vCJD) via blood transfusion have largely relied on data from rodent experiments, but the relationship between dose (amount of infected blood) and response (vCJD infection) has never been well quantified. The goal of this study was to develop a dose-response model based on nonhuman primate data to better estimate the likelihood of transfusion-transmitted vCJD (TTvCJD) in humans. Our model used dose-response data from nonhuman primates inoculated intracerebrally (IC) with brain tissues of patients with sporadic and familial CJD. We analyzed the data statistically using a beta-Poisson dose-response model. We further adjusted model parameters to account for the differences in infectivity between blood and brain tissue and in transmission efficiency between intravenous (IV) and IC routes to estimate dose-dependent TTvCJD infection.

andrew_laughing_edit

*** The model estimates a mean infection rate of 76% among recipients who receive one unit of whole blood collected from an infected donor near the end of the incubation period. The nonhuman primate model provides estimates that are more consistent with those derived from a risk analysis of transfused non-leukoreduced red blood cells in United Kingdom compared to prior estimates based on rodent models.

IMPORTANCE TTvCJD was recently identified as one of three emerging infectious diseases posing the greatest immediate threat to the safety of the blood supply. Cases of TTvCJD were reported in recipients of non-leukoreduced red blood cells and coagulation Factor VIII manufactured from blood of UK donors. As the quantity of abnormal prions (the causative agent of TTvCJD) varies significantly in different blood components and products, it is necessary to quantify the dose-response relationship for a wide range of doses for the vCJD agent in transfused blood and plasma derivatives. In this paper we suggest the first mechanistic dose-response model for TTvCJD infection based on data from experiments with nonhuman primates. This new model may improve estimates of the possible risk to humans.

1 chrisitne grave thatcher killed my son

FOOTNOTES ↵#Address correspondence to Hong Yang, Hong.Yang@fda.hhs.gov Copyright © 2014, American Society for Microbiology. All Rights Reserved.

http://jvi.asm.org/content/early/2014/09/11/JVI.01805-14.abstract?papeto

 

Tuesday 2nd September 2014

Today would have been my only son Andrews’s birthday, time doesn’t heal and hasn’t taken away my determination for justice and transparency in all aspect of Human BSE for its thousands of past present and unfortunately future victims.

But most of all today is about remembering my handsome, gentle, lovely Andrew the world is a much sadder place lacking my son’s kindness, vivacity, integrity and talent.

FROM ONE WHO STAYS

How empty seems the town now you have gone!

A wilderness of sad streets, where gaunt walls

Hide nothing to desire, Sunshine falls

andrew grin

Eery, distorted, as it long had shone

On white, dead faces tombed in halls of stone.

The whir of motors, stricken through with calls

Of playing boys, floats up at intervals;

But all these noises blur to one long moan.

What quest is worth pursuing? And how strange

That other men still go accustomed ways!

I hate their interest in things they do.

A spectre-horde repeating without change

An old routine. Alone I know the days

Are still born, and the world stopped, lacking you.

Amy Lowell (1874-1925)


 

Tuesday 12th August 2014

Currently there are several foreign scientists and researchers developing individual blood and urine screening tests for vCJD.

These  experts rely on the support of the UK Department of Health and Government for their tests to become validated to screen large numbers of the public. During this fraught process it’s very easy for the UK Government to scupper the research, issues like funding, withholding of blood samples from vCJD victim’s and many other reasons can be used to make sure that a blood/urine screening test is never within the public domain.

1 chrisitne grave thatcher killed my son

In the seven years since my Andrew was unlawfully killed, I have supported and watched as many successful developments/ tests/potential treatments for the human form of mad cow disease fall by the wayside due to continual blocking/delaying by Whitehall. The Department of Health and UK government make all the right public noises and moves but ultimately have sabotaged all of these tests, to protect those responsible for BSE and the legal ramifications for those individuals once a test for prevalence is implemented. The UK government is also mindful of the legal responsibility they would have when tens of thousands of people in the UK were tested positive and found to be carrying human BSE. It’s a can of worms Whitehall doesn’t want opened. Meanwhile our families and yet  more innocent people become exposed to blood not screened for vCJD and medical instruments contaminated with rogue prions that cause the lethal brain wasting disease, vCJD.

Billy H with poster thatcher and blood

With evidence from the Health Protection Agency that one in 2,000 of the UK carry vcjd its time for action. But the Department of Health continues to thwart any tests for vCJD becoming available for mass screening of our blood supply.

Olivier Andreoletti and his team of medics in France is one of many foreign researchers who are perfecting a blood test for vCJD. Olivier told me:

‘I do hope that the work we performed will be of some help for the development of a blood vCJD screening programme. Such programme could allow the screening of blood donors and/or the identification of person that are incubating the disease.
I also hope that some therapeutics will become available soon and will allow the  treatment of these asymptomatic persons.’

Banner_vcjd

Another expert  Claudio Soto  from Texas in the USA has developed a urine/blood test for vCJD Claudio’s team also need the support of the UK  and USA government for their work to proceed.

Claudio told me it would take several years for the test to be used publicly, however this time frame is extended by the many obstacles that are put in the way by the UK Department of Health, who delay any research conducted outside the UK and its governments total control. Claudio told me:

We are trying to get approval of this test for screening prions in

blood or urine to be used as a way to detect prion contaminated samples in blood

banks and to estimate the hidden prevalence of vCJD infection. We are doing our

best, but it will likely take several years before the test can be used

massively.’

Andrew suffering with vJCD

Andrew suffering with vJCD

I will continue to fight for justice, transparency and a test to screen all donated blood.

Chapter 42, page 242 Who Killed my son?

‘Andrew I will continue to fight for the truth. On your behalf I will fight for the millions of mothers and fathers whose families were also exposed to BSE, and for every child’s right to safe food and medicines, the right for every child to have a healthy and long life.’

 

 

 

Thursday 24th July 2014

Today the Science ant Technology Committee published its report After the Storm? UK Blood safety and the risk of variant Creutzfeldt-Jakob Disease. I gave oral and written evidence and all committee members read my book Who killed my son?

The report is scathing and highly critical of the UK governments ‘casual’ attitude towards vCJD and public health and safety. They have made many strident recommendations but this is only useful if David Cameron and his government take note and act.  Delay, block, intimidate, dis-respect  has been the theme surrounding all aspects of vCJD/BSE.

I welcome this robust report from the committee members, lets hope that action now takes place to prevent further deaths  of Human BSE  via contaminated blood/ cells/ tissues/ medical instruments.

Below is the link, my evidence has been published throughout  some of the main points of the report are:

Conclusions:
1. A recommendation that the Government begin a large scale vCJD blood prevalence study in the UK within 12 months ( Conclusion paragraphs 14/15)
2. A recommendation that the Government conduct immediate audit on those ‘at risk’ of vCJD. ( see Conclusion Report paragraph 18)
3. Calls for the Government to back research into atypical dementia- amid concerns that CJD is being mis diagnosed in the elderly (Report Conclusion paragraph 21)
4. Criticism of SABTO ( the advisory committee on the Safety of Blood, Tissues and Organs) for its ‘relaxed’ approach to vCJD in the light of recent evidence as one in every 2,000 people could be infected with vCJD without showing any symptoms. (Conclusion Report paragraph 22)
5. Criticism of the Government for its current attitude ‘ our fear is that the Government current attitude is driven less by the available scientific evidence than by its optimism that vCJD is no longer a threat to public health that it once was. In the current economic environment this attitude is not surprising. However its is not justified for all we know the storm may well be on-going.’ (Report Conclusion paragraph 23)

 

Tuesday 8th July 2014

Cattle diagnosed with BSE in Germany, Romania and Greece and a USA resident dying of vcjd the human form of mad cow disease in a Houston Hospital May 15th 2014; highlights how this deadly disease continues to kill, main and destroy animals and humans.

Though the report below discusses one case of BSE in Romania, cattle like humans can be symptom free but still deadly infectious. How many other cattle in Romania infected with mad cow disease have already entered the human food chain and been consumed? One cow can make literally hundreds of meat products and of course bovine material can be used to produce hundreds of vaccines for humans.

OLYMPUS DIGITAL CAMERA

Meanwhile the media continues to report on hundreds of patients who have been told they are at risk of developing cjd due to contaminated blood/surgical instruments.

This blog could run into pages and pages of the rising toll of mad cow disease in both animals and human population. Yet authorities in the UK and globally continue to push their heads in the sand hoping that this modern day man made plague will simply go away, when the list of victims and those disabled by vCJD continues to grow.

With this blog is a photo of me at Pitsham Farm West Sussex where the first officially diagnosed cow with BSE was reported in December 1984, but not publicly announced for many years.

The same UK departments who lied and hid the truth about the Ptisham Farm cattle dying of BSE are currently investigating the Romanian BSE case.

I remain concerned about how much transparency and honesty there is in the reporting of BSE in cattle and human vcjd, as the conflict of interest shown by various governments and their alliances with the meat industry often means human and animal health is a poor second to commerce and making profits for large corporations. A conspiracy that goes to the very top of the British Establishment continues to pressure scientists and medics into under reporting cases of BSE and vcjd in humans, and of course any victim’s of vcjd from consuming BSE infected material from Romania, Greece or Germany  will not become ill for many years.

Below is the latest report about cattle in Romanian with BSE

http://www.whas11.com/news/world/265550981.html

Suspected mad cow disease found in Romanian bee

 

Associated Press

Posted on July 2, 2014 at 12:02 PM

Updated yesterday at 5:36 PM

BUCHAREST, Romania (AP) — A case of suspected mad cow disease has been found in Romanian beef, officials said Wednesday.

Romania’s animal health and safety authority said a preliminary test on May 1 indicated that a cow slaughtered at an authorized abattoir was infected with bovine spongiform encephalopathy, or BSE.

It said the carcass has been sent to a British laboratory for further tests and it could be an “atypical form of BSE which appears naturally and spontaneously in cattle.”

The officials only revealed the case after Russia decided to ban imports of Romanian beef, citing fears of BSE. It wasn’t clear how the Russians learned about it.

They said Romania has not had a case of BSE since 1995 when testing began and there was no risk to public health from the current “isolated case.”

BSE is fatal to cows and can cause a fatal brain disease in people who eat tainted beef. It first broke out in the late 1980s in Britain, where hundreds of people fell ill and many died after eating contaminated meat. Over the years, 4.5 million cattle were slaughtered to contain the spread.

Outbreaks followed in Japan in 2001 and Canada in May 2003.

Romania exports up to one million cattle a year, mainly to the Netherlands, Italy, and Croatia.

Tuesday June 10th 2014

http://www.foodsafetynews.com/2014/01/germany-finds-first-mad-cow-case-since-2009/#.U5VeNE1wbIU

Germany has identified a 10 year old cow with BSE. What is extremely worrying is that the cow showed no symptoms of the disease but as it was tested before slaughter was found to be infected with mad cow disease.

kate richer vjd victim with cows

Cows this age are automatically tested for BSE but younger cattle are not, so just how many BSE infected cattle are still entering the human food and medicine chain globally? Cattle showing no symptoms but infected with lethal mad cow disease?

 

Before BSE there was no such thing as older cattle spontaneously developing BSE as it didn’t officially exist before the mad cow disease epidemic that infected at least a million UK cattle and which was exported globally, via our animals, food and medicines.

Kate_university

With this blog are photos of Kate

Richer aged 10 years old during a farming holiday in the UK. Also a later picture of Kate a talented music

university graduate who was killed by vcjd aged just 22 years old.

 

 

Tuesday 3rd June 2014

There has been a recent official confirmed case of vcjd the human form of mad cow disease, in  Texas USA posted by the Center of Disease Control.(see link and snip below)

http://www.cdc.gov/ncidod/dvrd/vcjd/other/confirmed-case-in-texas.htm

The human form of  Mad Cow Disease will continue to kill, maim and destroy families until we have greater transparency regarding the origins and enablers of this UK man made manufactured disease which has been exported worldwide via food, medicines, and animals.  This latest victim apparently spent time in Europe and the Middle East and the suggestion from the US government is this is where the latest US victim of vcjd contracted Human BSE.

My thoughts are with the victim’s family and friends, I am so sorry for their loss.

A few years ago a young woman called Linda from Texas aged 39 with six children died of what her doctor diagnosed as Human BSE. Linda slaughtered cattle for over ten years in a Texas factory called Tyson  which produces beef products that are eaten across America. I believe Linda and the latest victim from Texas are connected and there is/may be a common regional environmental factor involved.

KCa

Linda lived and worked in the USA all her life, the American authorities overturned local experts diagnosis of Human BSE, claiming that Linda had died of sporadic CJD aged 39.

Linda’s family are not convinced and continue to fight for the truth regarding Linda’s untimely death which mirrored all the symptoms and signs of vCJD.  I have communicated at length with Linda’s family, friends and medics in the area. There appears to have been a cover-up, Linda’s family and young children have been treated with a great deal of disdain by officials  mirroring the intimidation that families affected by vCJD here in the UK receive when they dare to challenge under-reporting of cases of Human BSE.

CDC CENTER OF DISEASE CONTROL Posted June 2nd 2014Laboratory tests have confirmed a diagnosis of variant CJD (a fatal brain disorder) in a patient who recently died in Texas. The confirmation was made when laboratory results from an autopsy of the patient’s brain tested positive for variant CJD.CDC assisted the Texas Department of State Health Services (DSHS) investigation of this case and will continue to help confirm further details of the patient’s history, including potential source of infection.chris downing stHere is me outside Number 10 Downing Street, I have been refused meetings with Prime Minister David Cameron, he and his government do not wish to examine the true cost of Human BSE to the nation and global communityBelow is a photo of me being filmed at Pitsham Farm West Sussex UK where the first cow was officially diagnosed with BSE December 1984 but it was many years before that information was made public it was kept secret by those I name and shame on this website and the UK Government. .OLYMPUS DIGITAL CAMERASunday June 1st 2014UK victims of  CJD continue to grow including a woman aged just 27 years old and an Australian girl with English connections aged 18. There are just too many other victims for me to mention in this short blog.Rising cases of CJD in much younger people is alarming. Whitehall continues to keep victims and their families secret and isolated from each other. Families warned by DOH officials  ‘your son/daughter is the only one to have this disease’, when in fact within a few streets other people are dying of the disease too.AndrewafterhavingimmunisationWith dodgy accounting the UK Department of Health are moving cases of CJD caused through BSE into various other health columns or shifting cases as statistics to other countries and continents.This under reporting and manipulation of people affected by CJD  by the UK government gives the public no factual or correct indication of the true numbers past and present who have and are succumbing to the human form of mad cow disease.This under-reporting of victims of Human BSE is happening all over the globe.A site dedicated to USA victims of CJD  has managed to find over 900 members in a few months, many of these victims in their 30’s/40′s. Meanwhile cases of dementia in younger people continues to explode we face a global pandemic of dementia, in direct correlation with human exposure to BSE infected material.Banner_vcjdCJD is a ticking health time-bomb that the authorities here in the UK continue to push under the carpet, families threatened not to speak out or even tell their neighbours of CJD diagnosis, victims treated by the UK department of health like guinea pigs to boost funding for government backed scientist and medics.Currently the UK population continues to receive blood/blood products taken and re-cycled  from thousands of UK blood donors who may silently carry or be incubating Human BSE.With incubation periods upward 40 years plus, the UK government and ministers know that it will be many years before the true human toll will come to light.In similar prose that was  used in the 1980s and 1990s by John Gummer, Kenneth Clarke, Margaret Thatcher and all those named and shamed on this website throughout the BSE epidemic, Prime Minister David Cameron’s Conservative led government continue to tell us that the UK blood supply is safe. Despite over 100 blood donors being implicated in several people who have gone on to die of vcjd.  Thousands more blood donors are unaware of their ‘ at risk’ status, and so continue to give blood, which is also used to manufacture hundreds of thousands of doses of vaccines.police handshakeExperts who have given evidence at the current UK parliamentary inquiry into vCJD and safety of blood tissue and organs, have tried without success to discredit my website, evidence, book and findings, in a desperate effort to protect  individual careers, salaries and also to shore up a government policy which has continued to hide the truth about BSE, its on-going dangers and those responsible for this modern day man made deadly disease. The human form of mad cow disease has killed people from every faith, ethnicity, background and career, including the armed forces, police, care workers, teachers, nurses, doctors and consultants. I have a great deal of support from many areas of the public and public sector organisations and for that I am truly grateful.But, despite the growing victims of Human BSE, officials corrupted by funding opportunities, promotion, financial  gain, over-blown scientific egos have chosen to look the other way, offer selective research, lie and cover-up the truth so that their livelihoods and status is guaranteed. Meanwhile more and more innocent people will continue to die of Human BSE, be pushed aside by Whitehall and dismissed by those in power.I have no financial, career or funding  gain from my truth telling all I have suffered is more heartbreak and distress, what pushes me ever forward is the memory of my 24 year old Andrew dying of the human form of mad cow disease pleading with me : find out who did this to me mum and expose them’ andthis must never ever happen to anyone else.’Andrew_waterloo_stationI carry my son always in my heart and will never stop until the truth emerges for public scrutiny and accountability. I want to protect your family from the pain I experience every day due to loosing my son so young  to human BSE an avoidable disease.Love will conquer all.“When I despair, I remember that all through history the way of truth and love have always won. There have been tyrants and murderers, and for a time, they can seem invincible, but in the end, they always fall. Think of it–always.”
Mahatma GandhiFacts do not cease to exist because they are ignored.”
Aldous Huxley, Complete Essays 2, 1926-29